Wednesday, May 18, 2016

Childhood Apraxia of Speech

About a month after speech began, Sam's speech pathologist said she wanted to talk to me. His speech was slow in coming. He had a few sounds, nothing unprompted, and he wasn't blending sounds unprompted at all.

I knew this was something real. I could feel her tension and hesitation.

Big words. Words I had never heard before.

Childhood apraxia of speech.

She suspected, she wanted him on the waiting list early, and we could always take him off if he suddenly made big improvements and it was clear she was wrong.

I agreed. Of course, I want the best for Sam. Whatever this all means...

What does this mean?

I remember my mind reeling. I remember fear, and dread, and the sudden onset of guilt.

She explained that apraxia is a disconnect in the brain. That Sam knew exactly what he wanted to say, that the words were there, in his mind, but when he tried to say them, the connection from his brain to make the muscles of his mouth move properly was, for some reason, disconnected.


I was quiet, processing, asked what this would mean long term for Sam, but she had no answers. She said every child was different, every case was different.


I signed a form to put him on the list to seen by the pediatrician, at the center. She gave me some sheets for more detailed information on apraxia. I smiled, trembling a bit, and gathered up Sam. I said thank you, and we left.

Its been 2 1/2 months since that day. Its burned in my mind. The guilt. That I did something wrong. The fear. For his future and what it will hold. The dread. Of the long hard road ahead for him.

I cried and cried and cried that day. Goran knew immediately when he got home that something was wrong. He tried to get me to talk but I just choked up tears burning my eyes, sliding down my cheeks. I showed him the info sheets. He quietly read them through. "This doesn't change anything for us! We luv Sam just the same." Of course I felt the same way, but there were all those feelings, of guilt and dread and fear, and it was so raw I couldn't even get them out. I remember snuggling a sleeping Sam that night crying and feeling so sad, so burdened, and so alone.

Processing takes time. I've come a long way since that day, but I'm sure there is more to deal with as we move through this journey.

I've joined an online support group, and it is a constant place of support and inspiration. I luv when people post videos of their 5, 6, 7, year old kids talking. So encouraging for someone else to write, 'at 3 my son only had 3 words, and now at 10 he can be understood by strangers'

I will fill in more gaps, but this is a big post. Writing is part of processing for me, and leaving this here for the world to see, feels big.

As with all our children, we luv Sam completely. As with every one of our children, we are providing him with every opportunity for him to reach his full potential. And as with all the children God has given to us, I am confident he was given to us, and he is the part of the puzzle of our family, and I wouldn't change a thing.

Happy Birthday Sam

February 17th we celebrated Sam's 3rd birthday. Surrounded by family and friends he blew out his candle in his green dino pjs from aunt Kristyn which he still luvs <3 p="">

Tuesday, May 17, 2016

New Post - New Beginnings

I counted months. I counted weeks. I counted days. I counted bus trips. And the last day came with mixed feelings of hope, worry, joy, excitement, and relief. I had made it. The weekend felt surreal, and then Monday morning came. The 1st day of my maternity leave. I woke at 4:30, and lay there thinking about the routine and consistency I had left behind. I eventually went to the couch, because honestly, its hard to get comfortable in bed at this point. My one leg is forever falling asleep, indigestion is terrible and Sam can be a bed hog. Goran got up and rushed around packing a lunch, making breakfast for the commute to work and flew out of the house. I eventually dozed off, and then Sam joined, me on the smaller then bed couch, for cuddles. I thought about the kids, the drivers, and dispatch.

Suddenly it was time to get up, make breakfast, get the day moving for the kids, and me and the plans we had.

It was a day with a slow pace. No rushing. Time to breath in the fresh air, feel the sun, listen to the laughter, watch the learning, read books, bake together, tidy together and remind myself why I have almost 6 kids. Why I luv being a mom, and why I choose to homeschool.

A beautiful quiet afternoon spent by the river with friends, We are taking a break from hand held screens.  So the kids are able to fully enjoy fish hunting, wet feet, a snack by the river, friends, and sunshine, 

Today is day 2, very much like day one, with less mixed feelings and more feeling of contentment, relief and happiness. 

There is so much to say, and so much to catch up on. I missed Sams birthday, and other news, but will catch up in the next few weeks. 

Keep posted!